So, you all know about the back issues that make me feel like an old woman all of the time, but thats not the only medical issue I have. I was also diagnosed with interstitial cystitis in October. Basically it means that the lining of my bladder is permanently irritated. I'm lucky enough to not have the worst of the symptoms but before treatment I did feel like I had to pee all the time and have some flare ups (which were confused with UTIs). The drug I've been prescribed creates a kind of coating inside my bladder to prevent irritation (think pepto for the bladder). So in October I started the initial treatment to kind of jump start the drug into my system. The problem with taking a drug orally for the bladder is that only a small percentage of the drug actually gets to the bladder, the rest is absorbed before it gets there. So the way around this is to insert it directly into the bladder...with a catheter. So I had 16 bladder instillations were exactly that was done. Since then i've been taking the drug orally but recently started having some pain and a return of the constant feeling of having to pee. So I went to see my doc and he said, particularly since I'll have to be off the drug entirely for the week before and after my surgery (it has MILD blood thinning properties) that we'd just do another 6 week (12 treatments) course. Yay. And half of these fall after Keely is out of school so I'll be begging my mommy friends to help out a bit. (And I'm sure they will. They are such a great bunch.)
I just find it seriously depressing that I'm not even 30 (unlike Megan!!) and my body is falling apart. I've had a hard time since the doc appointment with being depressed about this. Probably doesn't help that Daniel is in San Francisco and I'm flying solo here. I shouldn't whine since things certainaly could have been worse, but they sure could be better too!
I feel exactly the same. You (we:)) are not alone. Let's just say I have issues, too, and I'm in complete denial of my age (almost 35-oh, wait, I'm forever 29 now!). I think most people probably have some sort of issue. We just feel like we are alone. Hang in there!!!
ReplyDeleteI got that diagnosis when I was maybe 24-25.... I've never met anyone else with it!! Hell of a thing to have in common. I don't take the meds anymore, so I have to be super careful what I eat and drink. Love ya!!
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